Health transition means moving from pediatric to adult health care. It includes finding the right doctors, educating your child about their health needs and teaching your child the skills they need to advocate for themselves.
This is a plan that is most often developed by the individual in collaboration with the parents, doctor and other health care providers.
Find more information here: Getting Ready for Healthcare at the Age of Majority
Taking Charge of My Health Care: A Workbook for Youth and Young Adults with or without Disabilities (In Spanish) This workbook will empower adolescents and provide the needed tools to become more independent and take charge as they move from pediatric to adult health care.
Preparing Your Adolescent for the Transition from Pediatric to Adult Health Care: A Workbook for Parents and Caregivers, Moving from Health Care Leader to Supporter (In Spanish) This workbook will provide parents with the tools to prepare their adolescent to take charge as they move from pediatric to adult health care.
Your child is at the center of the team. Other team members include you (parents), other family members, your child’s current pediatrician and pediatric specialists, his/her teachers, and providers and specialists who serve the adult population.
A Health Transition plan is different from an education-based IEP transition plan. But a Health Transition Plan will help you and your child recognize what goals need to be set. And these goals can be incorporated into the school-based education plan.
Health transition is a process, not a one time event. To have a smooth transition, you and your child should assess strengths and set goals. This timeline can serve as a guide to help you see what needs to be done to make the transition process easier.
Having Sickle Cell and also having great doctors, yes, the transition was very hard. I was about 19 or 20 before I actually made the “big move.” I didn’t want to leave my doctor I had been knowing all my life. I felt like no one else could or even knew how to take care of me like my pediatric doctor. She was able to keep me under her care until I was ready. My first year or so in the adult clinic, my mom was at every visit, and sometimes my dad too. That experience was not a very fun one. I wish I had all the things the children have now to help them transition better into adulthood. They have a transition clinic. This is a program where the patients can meet the staff from the adult clinic. They also have a notebook with all their history and information in it. I must say, after my transition, I gained a 2nd family aside from my pediatric family.